Nargis Jahan (Lia), the speech and language therapist of the Bangladesh Cleft team, reports on her recent visit to GOSH, funded by CLEFT.
|A genetic study ascertaining if the TBX22 transcription factors plays an important role in submucous cleft palate|
|A PHD study of the muscles of the soft palate|
|An evaluation of the outcomes of over 200 operations on palates which did not have classical clefts or submucous clefts|
We aim to push the boundaries of conventional treatment by funding research into improving operating techniques and by looking at the underlying reasons for cleft deformities.
|Creating a dedicated Cleft Centre in Dhaka, Bangladesh|
|The purchase of magnifying loupes, headlights and a microscope cable for Colombo, Sri Lanka|
|Distribution of DVDs overseas demonstrating surgical techniques in the management of patients with cleft lip and palate|
Our Major Overseas Focus: Creating a dedicated Cleft Centre in Dhaka, Bangladesh
Magnetic Resonance Imagining (MRI) is a powerful diagnostic tool, routinely used in hospitals – but not yet on cleft patients. The aim of this project is to use MRI to improve our understanding of the palate anatomy and to improve diagnostic tools and techniques. The results will aid surgeons in cleft repairs and enable more accurate diagnosis of errors in speech.
CLEFT is working with surgeons at the National Institute of Burns and Plastic Surgery (associated with Dhaka Medical College Hospital, Dhaka, Bangladesh) to establish a multidisciplinary, comprehensive cleft and craniofacial centre. We have been greatly encouraged by the support offered by The Emirates Airlines Foundation, who have generously agreed to fund 10 return air fares for medical personnel over the next year.
We believe that this centre can act as a model for a revolution in cleft care in Bangladesh. Truly comprehensive cleft care involves a great deal more than one or two operations in infancy. Patients in the UK are cared for by all the specialists in the cleft team, from birth to adulthood. We want to ensure that, in the future, babies born with a cleft in Bangladesh have the same opportunities as those in the UK.
Many of the cleft patients CLEFT has helped have kindly agreed to have their stories told on our website.
Thanks to them we can share their experiences with you. It is very satisfying for the medical teams and parents to see how far they have come since their initial diagnosis with a cleft.
Kirstie had a unilateral cleft of her lip and palate. Her lip was repaired at the age of 3 months and her palate at 6 months.Her Story
Saturday 1st July 2017 The Moonlight Colourthon is a half marathon evening walk along the Essex coastline along the cliff tops of Southend and then through picturesque Old Leigh.
Royal Parks Foundation Half Marathon race through London and four of its eight stunning Royal Parks.