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  1. FAQs

CLEFT Fundraising Committee

Our small Fundraising Committee was created in March 2021. In the short time it has been running, members have raised much needed funds by selling clothes on Ebay, taking part in challenge events and, of course, setting up community based events themselves.

We currently have 7 committed members who meet every two months to plan and discuss what can be done. We would love to expand so if you have an interest in fundraising and would like to get involved, please email us at [email protected] - we would love to hear from you! 

Gwyneth Sommerlad

The charity has been part of my life since it began more than 10 years ago.

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CLEFT has been an important part of the life of our whole family and their friends. All have been involved in some way – running, cycling, helping with the website and being part of the concerts and other events. My two visits (self-funded as are all trustees’ trips) to Bangladesh have helped me to understand how important is the project there and shown me how much the staff and patients in Dhaka Medical College Hospital appreciate the work of CLEFT.

Published: 31st October, 2018

Updated: 13th September, 2022

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Kaye Knowles

I live in West London with my husband, Peter. We have two sons, David & Andrew.

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My career has included many years as a professional violinist (BBC Philharmonic, Bridge String Quartet) and as a violin then classroom teacher. I now teach Dalcroze Eurhythmics at the Guildhall School of Music and Drama on their String & Brass Training Programme and for Dalcroze UK on the Teacher Training programmes as well as on courses all over the world.

I was born with a cleft lip and palate and first encountered CLEFT runners in 2014 at the Royal Parks Half Marathon. That year I ran for Great Ormond Street Hospital charity, which is where I received my treatment. This included over a dozen operations. In the following year, 2015,  I decided to raise money for CLEFT. I then volunteered to run the Uganda Marathon in 2016 and raised over £2,000 for the charity.

I am keenly aware of how privileged I am to have had my cleft repaired by the very best surgeons and how this has allowed me to lead a normal life! My experience in Uganda was a sharp reminder of what can happen when superstition and lack of education are the norm. I have been moved at how cleft charities have literally given people the opportunity to have a life.

 

Published: 27th September, 2019

Updated: 6th June, 2024

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Mahaveer Sangha

2021-22 Founder and Chair of the Student Section, I am currently a trainee doctor and a member of the CLEFT Fundraising Committee.

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My name is Mahaveer Sangha, I am a trainee doctor having recently graduated from University College London. I originally joined CLEFT in 2017/18 as a Student Ambassador. I think the work CLEFT does is amazing. Without adequate and sustainable treatment, children with cleft lips/palates from less privileged backgrounds often face a life of stigma, social exclusion, and health issues. I joined CLEFT to help the charity, in any small way I could, to end this. I hope that one day no child has to suffer due to a lack of access to sustainable cleft lip/palate care and believe that by working together and raising awareness about this issue, that day will soon come.

Published: 13th October, 2021

Updated: 13th September, 2022

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Julie Davies

Senior Specialist Speech & Language Therapist, Royal Manchester Children’s Hospital.

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My name is Julie and I have been a speech and language therapist with the cleft team in Manchester since 1997. During this time, I have enjoyed working with a very committed team of cleft professionals, been involved in research, been Chair of the Speech and Language Therapy Clinical Excellence Network and Treasurer of the Craniofacial Society of Great Britain and Ireland.  I am a keen walker and love the outdoors and so joined CLEFT to support the charities fundraising in any way I can and hopefully through my contacts, friends and family will be able to encourage more people to join us.  

Published: 13th September, 2022

Updated: 18th December, 2023

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Ailbhe McMullin

Consultant Cleft Orthodontist, Royal Manchester Children's Hospital

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Published: 7th November, 2022

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Siobhan McMahon

I am currently the Lead Speech and Language Therapist with the cleft team based at Alder Hey Children’s Hospital, Liverpool.

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I have had experience working with cleft teams in a number of low/middle income countries including Nepal, India and Vietnam.

Published: 8th June, 2023

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Latest

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  • Donate to CLEFT

    Donate to CLEFT

    You can make a one-off donation today or sign up to giving a regular monthly gift. All donations, small or large, will help us to improve the lives of those born with cleft lip and palate both now and in the future.

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    National Institute of Burns and Plastic Surgery

    We are working with Bangladeshi specialists at the new National Institute of Burns and Plastic Surgery to create a sustainable centre to treat children with cleft lip and palate.

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    Our mission

    CLEFT was established in 2007 with one aim, to help improve the lives of children born with cleft lip and palate, either by funding research into the likely causes of the condition or by helping support teams in lower and middle income countries.

  • Nawrin and the C-Arm

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    This important piece of equipment was supplied by CLEFT and is used to see moving images of the cleft palate. Nawrin is a 13 year old girl who was experiencing speech difficulties and needed the C-Arm to show the cleft team if further surgery was required.

  • About us

    About us

    CLEFT was established in 2007 by cleft surgeon Brian Sommerlad - based at Great Ormond Street Hospital for Children, together with a former patient and a patient's grandmother.

  • The genetics of cleft lip and palate

    The genetics of cleft lip and palate

    Investigations into the genetics of cleft lip and palate to understand more about why cleft lip and palate occurs.

  • Brian Sommerlad, Consultant Plastic Surgeon and Chair of Trustees

    For over 40 years, I have been involved in operating on babies, children and adults who have been born with cleft lip and/or palate.

  • Our research vision

    Our research vision

    At CLEFT, our vision is of a future where clefts are preventable. Until we get there, we want to improve the lives of those born with cleft lip and palate.

  • Trusts and Foundations

    Trusts and Foundations

    Today, 1-in-700 babies in the UK are born with a cleft lip and palate, the most common form of birth defect. The impact on a child’s life as they grow is profound. Typically, they will need at least four operations. They may also require ongoing tests, treatment or therapy. It will affect the way they look but also their speech, hearing and dental development. It can leave deep psychological scars.

  • Privacy Policy

    Privacy Policy

    PRIVACY POLICY

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Writtle
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