We aim to provide long-term, sustainable ways to bridge the gap in cleft care and knowledge in the UK and overseas

Alannah's story

Alannah is a lovely, normal teenage, born in 2006 with 22q11 Deletion Syndrome. Her mother tells her story here.


Author: Melanie Baldwin

Paying for stitches

Traditionally, patients are often asked to buy some of the materials that are needed for their operation at the Sheikh Hasina National Institute of Burns and Plastic Surgery, including sutures for the stitches they need.


Author: Melanie Baldwin

[email protected] now launched!

We are delighted that the website [email protected] is now available.


Author: Melanie Baldwin

A trip to the roof of the world

A group of 12 adventurers, aged between 12 and 58 years old, left London in October 2019 for the challenge of a lifetime – to climb Mount Kilimajaro in Tanzania. Everyone had spent a year planning, training and fundraising for it and were ready for the challenges that lay ahead. CLEFT trustee and Kilimanjaro climber, Tracy Morris, tells us her story....


Author: Melanie Baldwin

Our impact

1 in 700

children are born with a cleft palate.


the cost of a cleft operation on a baby in a low-income country.


cost to give treatment over a lifetime.

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Breakthroughs in cleft research

  • The genetics of cleft lip and palate

    Investigations into the genetics of cleft lip and palate to understand more about why cleft lip and palate occurs. Read more

  • TBX22 Mouse Model

    CLEFT has funded research into the investigation of a gene called the TBX22 that regulates important development events during normal palate function, in order to find new treatments. Read more

  • [email protected] now launched!

    We are delighted that the website [email protected] is now available. Read more

  • Soft palate muscles research

    A project to better understand the way the muscles of the soft palate work to see if improvements can be made to surgical techniques and reduce the need for further operations and speech therapy. Read more