Rosie O'Malley is one of CLEFT's trustees and often shares her considerable marketing experience with the team when needed. She is also mother to Alannah who has 22q11 deletion syndrome. 

Rosie pictured here (left) with her sister, Eden.

This video, which went out live on social media, shows Rosie talking about her journey as a parent of a child with a submucous cleft palate. 

You can read more about Rosie and Alannah's story here.